Pregnancy Loss

You don't have to go through a pregnancy loss alone.

Pregnancy loss doesn't just impact the birthing person. Everyone in the family grieves the loss of a baby.

Stillbirth data in Philadelphia

Pregnancy loss is one of the most heartbreaking experiences any family can go through.

Data source: Pennsylvania Vital Statistics

More than just a number
  • You're not alone; between 6 and 7 in 1,000 births in Philadelphia are lost at or after 20 weeks of gestation.
  • Between 2013 and 2023, the rates of stillbirth in Philadelphia dropped by 63%, with year over year decline since 2021.
  • In Philadelphia, the stillbirth rate ranges between 8.2 and 4.6 per 1,000 live births and fetal deaths.
  • In 2023, the United States stillbirth rate was 5.5, and the rate in Pennsylvania was 4.6.
  • Stillbirths do not impact all groups equally. Non-Hispanic Black Philadelphians have the highest rates of stillbirth of any racial or ethnic group.
    (Data not shown)
Signs of a stillbirth
  • Sometimes there are no signs that a pregnancy loss has occurred.
  • Change in a baby's movements may be the first sign they need help. Call your doctor if, after eating and sitting still, your baby moves less than 10 times in an hour.
  • Other signs include fever, heavy vaginal bleeding, feeling sick (vomiting, diarrhea, or belly pain), or swelling in the face, feet, or hands.
Why did this happen?
  • The causes of a stillbirth are often unknown. However, some causes can be linked to congenital anomalies, infection, injury, and long-term health conditions such as high blood pressure or diabetes.
  • Tests can be performed to see if a cause can be determined. These tests include blood tests for the birthing person, placenta and umbilical cord examination, and autopsy.
Who is at risk?
  1. People who are at a higher risk of experiencing stillbirth include those: 
  2. Over 35 years old
  3. Pregnant with multiple babies (twins or more)
  4. Who identify as Black or African American
  5. With high blood pressure, diabetes, or a history of past stillbirth
  6. Who smoke cigarettes during pregnancy
  7. Health disparities are not rooted in biological or genetic differences between races. These disparities are due to many underlying causes, including structural discrimination and access to quality health care.

Next steps

The next steps following a pregnancy loss can be overwhelming. Some things to consider include:

Testing options
  • Do you want to allow for an autopsy or participate in genetic testing? Speaking with your medical provider can provide insight into what this would look like for your family.
Funeral arrangements
  • No decisions need to be made right away.
  • Sometimes, gestational age can impact arrangements. Speak with your hospital or medical provider about a timeline.
  • Some funeral homes may help families reduce costs for a baby’s funeral or burial.
  • Resources are available that can help you make decisions about burial and/or cremation, including the Tears Foundation, Timesone Monument, and Final Farewell.
Support
  • You deserve care, support, and compassion. Grief comes in many forms, and not every support option will be the right one for you. Resources are linked below.
Resources for families
Lactation after pregnancy or infant loss

If you have experienced a miscarriage, stillbirth, or the loss of a baby, your body may still make breast milk, especially if you were 16 weeks or more pregnant. This can be unexpected and emotional.

There is no right or wrong way to respond. What matters most is what feels right for you.

What to Expect
  • Milk may come in a few days after a loss, even if your baby is not here.
  • You may feel breast fullness, pain, leaking, or tenderness.
  • Hormone changes can make emotions feel stronger.

All of this is a normal body response.

You Have Choices

You can choose what you want to do about your milk. You can also change your mind at any time. No option is better than another.

You may choose to:

  • Stop your milk
  • Express (pump) milk for comfort
  • Continue making milk for a short time or longer
  • Donate milk, if that feels meaningful to you
If You Want to Stop Your Milk

Some people choose to stop milk production. Support may include:

  • Wearing a supportive bra
  • Using cold packs
  • Taking pain relief if needed
  • Talking with a healthcare provider about other options
Online Support Resources for Lactation & Milk Donation

Resources for Families

Resources for families who have experienced a pregnancy loss:

The Center for Loss and Bereavement

Offers monthly virtual group meetings for persons who have experienced the loss of a pregnancy or infant. Classes are scheduled based on interest.

  • Call: 610-222-4110 ext. 123
  • Serves: Birthing person, Partner, Children
Postpartum Support International

Offers virtual and text support in English and Spanish. Weekly and monthly phone chat support is available.

Three Little Birds Perinatal

Offers in-person and virtual support groups and volunteer opportunities.

  • Call or Text: 856-656-6436
  • Serves: Birthing person, Partner, Children
UNITE, Inc.

Offers free virtual and in-person support groups.

Adalyn Rose Foundation

Offers volunteer opportunities, in-person, and virtual support for the birthing person and family members.

  • Virtual support available en Español.
  • Serves: Birthing person, Children
Peter's Place: A Center for Grieving Children & Families

Offers support virtual, on-site, or school-based groups for children from aged 4 through high school and virtual support groups for adults.

Share: Pregnancy & Infant Loss Support

Offers online support groups which meet weekly or monthly. No pre-registering required.

  • Available en Español
  • Serves: Birthing person
Sanare Today

Offers in-person or virtual counseling services which include individual, intensive outpatient, partial hospitalization, and outpatient programs. Therapists are also available by text for emergency situations.

  • Available en Español
  • Serves: Birthing person
Maternal Wellness Center

Offers virtual six-week support groups. Some classes take insurance while others are offered at low-cost.

  • Serves: Birthing person
First Candle

Offers volunteer opportunities, peer support, and virtual support groups via Facebook.

Star Legacy Foundation

Offers virtual support groups for all members of the family.

  • National Grief Support Line: 952-715-7731 ext. 1
  • Available en Español.
  • Serves: Birthing Person, Partner, Extended family
Kindred360

Free virtual support groups and empowerment tools designed specifically for Black parents and caregivers.

  • Serves: Birthing Person, Partner
The Tears Foundation

Provides financial assistance for burial or cremation services for those who have lost a child. Complete online request for assistance.

  • Serves: Birthing person, Partner
Uplift Center for Grieving Children

Offers helpline staffed by clinicians.

  • Philly Hope Line: 1-833-PHL-HOPE
  • Available en Español
  • Serves: Children
Aubrey's Advocate

Offers community and peer support insurance assistance and financial assistance towards hospital costs.

  • Serves: Birthing person
Maternity Care Coalition

Offers individual therapy support, support groups, and referral to additional services.

  • Serves: Birthing person, Partner, Children, Extended Family
CocoLife.Black

Offers support groups led by doulas and grief support specialists.

  • Serves: Birthing person, Partner, Extended Family

If you are an organization that serves those who have experienced pregnancy loss or stillbirth and would like to be listed here, please email: PhillySOARS@phila.gov 

Podcasts

Guys and Grief Podcast

Podcast specifically for men focused on pregnancy and infant loss. Can request one on one conversations with another dad who has experienced loss.

Grief Out Loud

Podcast about going through grief with a mix of personal stories, tips for supporting children, teens, and yourself, and interviews with professionals.

Still a Part of Us

Podcast about pregnancy and infant loss by and for loss parents to share their birth stories of their babies that were stillborn or died in infancy.

Books About Grief

“Empty Cradle, Broken Heart: Surviving the Death of Your Baby”
by Deborah L. Davis
"Gone But Never Forgotten: A Children's Book About Grief and Loss" 
by Pamela Rae Hughey
"Grieving Dads: To the Brink and Back"
by Kelly Farley & David Dicola
“He Lost His Baby Too: Survival Guide for the Grieving Dad”
by Kelly Farley & David Dicola
“It’s Ok That You’re Not Ok: Meeting Grief and Loss in a Culture that Doesn’t Understand”
by Megan Devine
"The Invisible String"
by Patrice Karst & Joanne Lew-Vriethoff
“Sad Isn’t Bad: A good-grief Guidebook for Kids Dealing with Loss”
by Michaelene Mundy & R. W. Alley
“How to Carry What Can’t Be Fixed: A Journal for Grief”
by Megan Devine

Pregnancy Loss Stories

Each loss is a loss for our community. These Philadelphians share their stories, how they continue to honor their child, what they wish others knew, and how their grief has changed since their loss.

Aliya William's story of what she wished others understood about her needs and the loss of her son Jace:

Losing a baby at 39 weeks is not something that time, words, or clichés can erase. I carried my baby for almost ten months, felt every movement, planned for their arrival, and imagined our future together. To have all of that end in silence is a grief that reshapes who I am.

Arielle’s story of how her grief changed from the moment she lost Marigold to where she is now:

The grief from my loss will always be with me. It has changed and morphed, ebbing and flowing over time. Something will trigger the memory of my infertility and loss, and I'll be right back in those moments. I lost my first child early on, but it didn’t make the experience any less devastating.

Crystal Inez Grimes’ story of how she honors her daughter Empress Inez Grimes:

When I found out I was pregnant for the third time, I was thrilled. I kept the news a surprise from my 6-year-old daughter because she had been asking for a sibling. She prayed every night for a baby sister but told me she would be happy as long as the baby was healthy. When I finally shared the news with her, she was overjoyed.

Additional stories of loss coming soon.

Resources for Providers

How to communicate:
It can be difficult to know what to say or do to help a person experiencing a pregnancy loss. Here are some recommendations:
  • Ask the parent how they’d like to refer to their pregnancy loss and follow their lead.
  • Use common language. Avoid using overly medical terms that can add trauma.
  • Hold space for their grief, however it is expressed. Different cultures and religious express their grief differently and may have different rituals.
  • Pause before making a mental health diagnosis or prescribing medications; grief and depression can look the same.
  • Provide resources for grief support.
Recommendations for care:
  • Have a working cooling bed available to allow family extra time with baby.
  • Provide memory making options such as photographs of baby and baby with family, foot and hand impression, etc.
  • Provide a bereavement packet including all instructions in writing, support resources, and information on funeral services and resources.
  • Have staff trained in perinatal bereavement care on the floor at all times. This includes providers, social workers, and volunteers.
  • Prepare patient for changes ahead including potential postpartum complications and lactation.
  • Offer autopsy which may deter anxieties and guilt for parents.
Sea Glass Parenting

Provides free to print and bulk order brochures, bookmarks, and rack cards
Type of support: Patient Materials

Three Little Birds Perinatal

Bedside bereavement program in-hospital [call/text: 856-656-6346]
Perinatal bereavement training for providers and volunteers who support parents of loss
Type of support: Training, Bereavement Care In-Hospital

Adalyn Rose Foundation

Remembrance carts for hospitals, healthcare bereavement training via video or in-person for staff
Type of support: Patient Materials, Training

Share: Pregnancy & Infant Loss Support

Online bereavement training, memory making workshop to learn how to honor the life lost
Type of support: Training

Star Legacy Foundation

Latest research information, virtual or in-person training with continuing education credits, free patient brochures
Type of support: Education, Training, Patient Materials, CE Credits

Chasing the Rainbows

Perinatal bereavement and trauma-informed training with CE credits offered.
Type of support: Training, CE Credits

International Stillbirth Alliance

Stillbirth toolkit, international standards of practice, virtual training, bereavement-related research articles
Type of support: Education, Training, Patient Materials

Partnership for Maternal & Child Health of Northern New Jersey

Virtual and on-demand training with CE credits
Type of support: Patient Materials

University of Utah Health

IMPROVE-USA half-day perinatal bereavement training
Type of support: Training, CE Credits

Association of Women's Health, Obstetric, and National Nurses (AWHONN)

Perinatal Bereavement Certificate Program, resources for cultural and religious bereavement rituals, photography and communication tips, etc.
Type of support: Training, Resources, CE Credits

Now I Lay Me Down to Sleep

Perinatal bereavement photography training
Type of support: Training, CE Credits

Bundle Kits:

Evidence-based, best practices for perinatal providers

"Saving Babies' Lives Care Bundle"

From the National Health Service, England

"Safer Baby Bundle Handbook"

From the Centre of Research Excellence Stillbirth, Australia

Philly SOARS Survey

The Philadelphia Study of the Associated Risks of Stillbirth (Philly SOARS) is a city-wide survey. The goal is to understand the experiences of Philadelphians who had stillbirths at or after 20 weeks pregnant.

Philly SOARS
  • Philly SOARS is a city-wide survey that asks people who have experienced a pregnancy loss at or after 20 weeks about their experiences, behaviors, and health before, during, and after their pregnancy.
  • Sponsored by the CDC Foundation, Philly SOARS was initiated in June 2024 and data collection started in February 2025.
  • Philly SOARS is based on the SOARS studies conducted in Utah and Ohio.
Everyone who experiences a stillbirth is surveyed
  • If you live in Philadelphia, are over the age of 14 years, and have experienced a stillbirth, you will receive communication asking if you’d like to complete the Philly SOARS survey.
  • The survey is currently available in English and Spanish.
  • You can respond online, by mail, or by phone.
How is the data used?
  • To understand how pregnancy loss impacts families and improve how healthcare professionals care for them.
  • To inform future initiatives and programs by the health department.
  • To guide the creation and implementation of resources for families who’ve experienced pregnancy loss and providers who care for them.
Steering Committee
  • Philly SOARS is guided by the members of our steering committee.
  • Members include individuals with lived experience, medical providers, non-profit organizations, and public health professionals.